Give me a "D" !
Ellie went in for Cath lab today. Wonders will never cease with my little girl. Dr. Cowley first put in the catheter and checked her blood flow to her heart and lungs. Then he measured the gradient (I'll have Chad look this up for you). She needed to be at a 50 if they were going to have to balloon the valve. She's only at a 30. So the Dr. came out smiling and said he didn't need to do the balloon right now. She will still probably down the road, but for now she's doing great!
He showed me the very first echocardiogram (ultrasound of her heart) they did the day she was born. Then he showed me the one they did when she turned 3 months old. You would never know they were the same heart! Her function has improved that much! Then he asked me what, besides her heart, was keeping her in the hospital. I told him just her NJ and getting her feedings figured out, but that we could take care of all that at home. He said that he was all for getting her home.
So.............................................. How does Friday sound? As in this Friday! That is the goal. Now, whether it happens or not, we don't know. It all depends on Ellie, but everyone from Phyllis to the Attending Physician is working to get her ready for her "Picnic Day." They don't say the "h" word in there. It's a four letter word in the NICU, and they are very superstitious about it. They told me everytime they say the "h" word, something happens to prevent it happening on that day. So they call it a picnic day. I think Friday sounds like a great day for taking my baby girl for a picnic.
So Phyllis has already started teaching me stuff I need to know to take care of Ellie. Chad and I have to take a CPR class, learn how to administer medication, and run a kangaroo pump. It's a pump that has a pouch to put her formula in to give her continuous feedings through her NJ tube.
We're keeping our fingers and toes crossed!
He showed me the very first echocardiogram (ultrasound of her heart) they did the day she was born. Then he showed me the one they did when she turned 3 months old. You would never know they were the same heart! Her function has improved that much! Then he asked me what, besides her heart, was keeping her in the hospital. I told him just her NJ and getting her feedings figured out, but that we could take care of all that at home. He said that he was all for getting her home.
So.............................................. How does Friday sound? As in this Friday! That is the goal. Now, whether it happens or not, we don't know. It all depends on Ellie, but everyone from Phyllis to the Attending Physician is working to get her ready for her "Picnic Day." They don't say the "h" word in there. It's a four letter word in the NICU, and they are very superstitious about it. They told me everytime they say the "h" word, something happens to prevent it happening on that day. So they call it a picnic day. I think Friday sounds like a great day for taking my baby girl for a picnic.
So Phyllis has already started teaching me stuff I need to know to take care of Ellie. Chad and I have to take a CPR class, learn how to administer medication, and run a kangaroo pump. It's a pump that has a pouch to put her formula in to give her continuous feedings through her NJ tube.
We're keeping our fingers and toes crossed!
posted by Lilacmusic | 11:55 PM
3 Comments:
How wonderful! :) Jake and I will keep on praying for you guys! :)
Picnics are so much fun! (Especially when you haven't been on one for a while! wink, wink.) Great news!
Love, the Sullivans
Hi Chad and Teri. We are hoping with you, that she gets to go on a "picnic" this friday too !!! My parents only get on the computer when I do, and for quite a while, I haven't been on that regularly. They have not learned how to work it real well yet. We are praying for all of you too.
Love,
The Shreeve's. :o)
Post a Comment
<< Home