Anyone for an update?
Snoozing in the swing with my bunny.
Everyone wondering what's going on? I'll try and recap all the stuff that has happened in the last 5 weeks without boring you to death.
Ellie went for her cardiology appointment on Sept 8th. Her heart is back up to normal function again...hooray! Her shortening fraction is up from 15% to 39% and her ejection fraction is up from 49% to 65%. Dr. Cowley was very happy with that, so he's keeping her on the digoxin until the next time we see him...which isn't until December! Hooray for baby girls! The funny part is he doesn't know if it's the med that did the trick, or if it was luck or what. I say it was prayer.
Okay, now the not so great news. When I took Ellie in for her 6 month checkup her pediatrician (Dr. Coopersmith) she had only gained 4 ounces in one month. Very VERY bad for her because heart babies have a delicate balance of getting just the right amount of fluids and weight gain. Too much or too little taxes their hearts too much. So Dr. Coopersmith came in and gave Ellie "the look." I started laughing and told Ellie she was in BIG trouble. She just grinned. Dr. Coopersmith said, "It never works on kids this age." She decided to give Ellie a 2 week shot to get some good weight gain before deciding to put the tube back in. Unfortunately, we ran into a little snag a week ago last Friday when Ellie decided to eat only 1-2 ounces of milk at a time instead of 4-5. So in went the tube and she's had it in off and on for the past week. The good news with that is when I took her in on Wednesday, she had gained 13 ounces in 2 weeks. That's what we need! Now if she'll only do it without the tube.... She's eating a little bit of solids, but not much. We shall persevere!
Since school has started the boys have been in school and have brought home...colds. Try as I might I can't keep them away from Ellie, so she has caught a cold too. Dr. Coopersmith checked her out on Wednesday and said it didn't look like RSV, just a normal cold, but to call her if she gets a fever or a really runny nose. Well you know how it goes, these things always happen on Saturday nights when the doctor's office is closed. Ellie had a temp of 100.7 so I took her to the 24 hour child healthcare office in Layton. The doctor there listened to her lungs and they were clear. That means it's still just a cold, but we still have to watch her close to make sure it doesn't turn into RSV or croup.
Ellie did get her flu shot this week. And hopefully will get the RSV shot SOON. The RSV shots are once a month and we're lucky the insurance covers it...it's only around $3000 per shot and she's got to have them from November until whenever the powers that be decide.
Hey lookie at me! I have a goatee just like my Daddy!
First I eat some cereal, then I eat my toes!
Hanging at Grandma Kara's with Uncle Jakie.
Getting kisses from Uncle Jeffro.
Everyone wondering what's going on? I'll try and recap all the stuff that has happened in the last 5 weeks without boring you to death.
Ellie went for her cardiology appointment on Sept 8th. Her heart is back up to normal function again...hooray! Her shortening fraction is up from 15% to 39% and her ejection fraction is up from 49% to 65%. Dr. Cowley was very happy with that, so he's keeping her on the digoxin until the next time we see him...which isn't until December! Hooray for baby girls! The funny part is he doesn't know if it's the med that did the trick, or if it was luck or what. I say it was prayer.
Okay, now the not so great news. When I took Ellie in for her 6 month checkup her pediatrician (Dr. Coopersmith) she had only gained 4 ounces in one month. Very VERY bad for her because heart babies have a delicate balance of getting just the right amount of fluids and weight gain. Too much or too little taxes their hearts too much. So Dr. Coopersmith came in and gave Ellie "the look." I started laughing and told Ellie she was in BIG trouble. She just grinned. Dr. Coopersmith said, "It never works on kids this age." She decided to give Ellie a 2 week shot to get some good weight gain before deciding to put the tube back in. Unfortunately, we ran into a little snag a week ago last Friday when Ellie decided to eat only 1-2 ounces of milk at a time instead of 4-5. So in went the tube and she's had it in off and on for the past week. The good news with that is when I took her in on Wednesday, she had gained 13 ounces in 2 weeks. That's what we need! Now if she'll only do it without the tube.... She's eating a little bit of solids, but not much. We shall persevere!
Since school has started the boys have been in school and have brought home...colds. Try as I might I can't keep them away from Ellie, so she has caught a cold too. Dr. Coopersmith checked her out on Wednesday and said it didn't look like RSV, just a normal cold, but to call her if she gets a fever or a really runny nose. Well you know how it goes, these things always happen on Saturday nights when the doctor's office is closed. Ellie had a temp of 100.7 so I took her to the 24 hour child healthcare office in Layton. The doctor there listened to her lungs and they were clear. That means it's still just a cold, but we still have to watch her close to make sure it doesn't turn into RSV or croup.
Ellie did get her flu shot this week. And hopefully will get the RSV shot SOON. The RSV shots are once a month and we're lucky the insurance covers it...it's only around $3000 per shot and she's got to have them from November until whenever the powers that be decide.
Hey lookie at me! I have a goatee just like my Daddy!
First I eat some cereal, then I eat my toes!
Hanging at Grandma Kara's with Uncle Jakie.
Getting kisses from Uncle Jeffro.
posted by Lilacmusic | 9:36 PM
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